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Atrial Fibrillation Video Series: Day Fourteen
When AF Affects More Than Your Heart: Coping with the Emotional Toll

 

Up to now, we’ve focused on the physical aspects of atrial fibrillation – what it is, how to treat it, and so on. But as important as those things are, I know that AF can also affect your emotional well-being. Let’s talk openly about the feelings and mental health side of living with AF, and some strategies to cope.

Being told you have a heart condition like AF can be stressful. It’s not uncommon to feel anxiety – for instance, worrying “Will I have a stroke out of the blue?” or “What if my heart suddenly races when I’m alone or at night?” Many patients describe a sense of vulnerability, knowing their heartbeat is irregular. Fear of the unknown or of serious events can creep in, even if logically you understand that with treatment the risks are controlled.

Some people experience panic or anxiety attacks that can be hard to distinguish from AF symptoms. A racing heart from anxiety can feel like AF and vice versa, creating a vicious cycle of worry. It’s also normal to feel frustrated or down. You might think, “Why did this happen to me?” or feel anger at your heart for not behaving normally. If AF episodes are limiting your activities – say you stopped exercising because you’re afraid of triggering AF, or you avoid travel because of “what if” scenarios – this can lead to a sense of isolation or depression. You might mourn the loss of the carefree health you once felt you had.

First, I want to assure you that these feelings are valid and common. As a doctor, I care about your mental health as much as your physical health, because one profoundly affects the other. Here are a few approaches my patients have found helpful:

  • Education and empowerment: Simply learning about AF (which you’re doing by reading these emails) can reduce fear. The more you understand what’s happening and how treatments reduce risks, the more in control you’ll feel. Knowledge really is power; it can turn that feeling of “time bomb in my chest” into “manageable condition that I’m actively treating.”

     

  • Open communication: Talk to your healthcare providers about your fears. Sometimes a reassurance – like hearing “your risk of stroke is very low now that you’re on the blood thinner” or “many people live long lives with AF” – can ease an anxious mind. Don’t hesitate to mention symptoms like anxiety or low mood; we might involve a cardiologist, GP, or counselor to support you.
  • Lifestyle and support: Light exercise (as approved by your doctor) can actually help anxiety and make you feel more robust. Practices like yoga or meditation can calm the nervous system and possibly even reduce AF episodes triggered by stress. Avoiding excessive caffeine or alcohol can also help both AF and anxiety. Connecting with others who have AF – perhaps through a patient support group or even a trusted friend with the condition – can relieve the feeling that you’re going it alone. Sharing experiences often lightens the emotional burden.
  • Mental health support: If you find anxiety or depression is overwhelming, it might be worth speaking to a therapist or counselor. Cognitive-behavioral therapy (CBT), for instance, can provide tools to manage health anxiety. In some cases, short-term use of medication for anxiety or depression is appropriate and nothing to be ashamed of. It’s all about getting you to feel better and enjoy life.

Remember, treating AF isn’t just about controlling a heart rhythm – it’s about ensuring you have a good quality of life. Your mental outlook and emotional health are a big part of that equation. It might comfort you to know that many patients, as they go through treatment and start to feel improvements, also see their anxiety ease up. Confidence returns: they travel, exercise, and live life fully, with AF more in the background.

You have a team (including me, via these emails!) that understands the emotional side of this journey. We’re not just here to prescribe pills or do procedures; we’re here to listen and support you through the ups and downs.

In our final email of this series: We’ll talk about moving forward with personalized AF care – how to tie everything together and plan the next steps in your AF journey.

Mr. Birdi
Cardiothoracic Surgeon
BMed Sci (Hon) BM BS FRCS (CTh) MCh

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